It was July 25th, 2015 when I came home to take a
pregnancy test and I learned we would be adding a sweet angel to our family! We
scheduled a doctor appointment to make sure everything was ship shape;
thereafter we would let our family know for sure of our wonderful news! Our
doctor told us our little darling would come January 19, 2016. He told us I was
far enough along that he was about 80% sure it would be a little girl! A little
girl! A tiny human to dress like me, put bows on, put in dance class or cheerleading
and love forever! I couldn’t be happier. We had an ultrasound scheduled at
20 weeks, on Sept 15th, to know the gender for certainty.
After what seemed like eternity, September 15, 2015 finally came! We were so eager to find out the gender and this day couldn’t come fast enough. We were beyond excited! I remember it in detail: It was a Tuesday. I was teaching dance in the morning until noon then I had a gap until about 4:30pm before I had to go back and teach a couple of night classes. Our appointment was scheduled in between my gap so I would have time to drive to the hospital and back and still be on time to my class. My sweet husband, Joseph, met me at the hospital. The ultrasound went like any ultrasound (I’m assuming). The tech listened for a heartbeat, measured the head, the arms, legs, torso. She told us we were indeed having a girl! A GIRL. Sweet music to my ears.
We made silly jokes about baby’s movements. Joseph held my
hand and we smiled at each other. We laughed out of joy and watched very
carefully as the tech kept measuring and writing things down. She kept going
back and forth over my belly, back and forth, back and forth. After a while, I
thought 'these ultrasounds sure take forever…' I had never had one before, so I
wasn’t quite sure what to compare it to. Then, I noticed that our sweet tech
wasn’t talking much. It was almost as if I had to pry information out of her to
see exactly what else she was looking at and what the pictures were. I had so
many questions of what exactly she was looking at, but I wanted to let her do
her job without interrupting her. The mood was kind of quiet. I had been lying
on the bed for a quite a while but didn’t care because I was happy! How amazing was it
to look at my sweet unborn child! I felt so blessed.
She asked me to lift up my shirt one more time. She put the
gel on again and began going back and forth, back and forth. She began talking
to us. She showed us the head, the spine, the arms, the fingers, the upper
body. She moved down to the lower body. Joseph and I were still holding hands
with a smile on our faces. She showed us the legs. She told us there are two
bones in the lower legs, the tibia and fibula. She told us the tibias are
measuring very short and there doesn’t seem to be any fibulas present. She
showed us the right foot then she said that there doesn’t seem to be a left
foot present.
My smile vanished. In that very moment, time had stopped.
You know that part in a movie where time stops and people are talking but you
can’t hear them. Everything around you seems to be going in slow motion. That’s
what this moment felt like. It felt like a dream. I just lay there blinking my
eyes staring at the monitor but not seeing anything.
I don’t understand.
What do you mean she’s missing a foot.
Where is it?
Why are the tibias short? Where are the fibulas? Maybe the
tibias will eventually catch up, but why doesn’t she have a foot. I don’t
understand. I didn’t say much of anything. My eyes became wet and tears were
silently dripping down my face. The tech quietly gave me a tissue. Joseph began
talking to her and asking questions. She told us that she didn’t have any
answers to our questions. She said she was on the phone with my OB/GYN and he
wanted to see us immediately. We tried to arrange our work schedules so we
could see my doctor tomorrow afternoon.
We left the office and walked down to the parking lot and
sat in Joseph’s car, and I completely lost it. I started crying so hard, I
couldn’t talk and I felt like I couldn’t breathe. Joseph told me some
comforting words and I realized how truly lucky and blessed I am to have him
in my life.
How was I supposed to tell my family that we were having
little baby girl with a missing foot? With missing fibulas? With deformed tibias? I had planned to do a super cute gender
reveal but none of that mattered anymore.
Joseph and I talked in the car for a long time. Eventually I
had to get back to reality so I got out of his car and into mine, then I drove
home 20 minutes, crying the whole way.
After coming home, I changed and got my things ready to go
teach my hip hop classes. It was a solid 30 minute drive to my class so I
called my mom, but no answer. I called my sister, but no answer.
They were both working but I had hoped that by some miracle, they would answer.
After teaching both my hip hop classes I drove home and my sister called me
back. She asked how everything went at the doctor and I told her everything and
I started to ugly cry once more and she cried with me.
There was nothing I needed more than to have someone just
cry with me. I didn’t understand why this had to happen in my life. In fact to
this day I’m still not exactly sure. I know my sweet darling will teach me
something very important. The more she grows, the more I will learn from her. I
believe in the power of the Atonement. I believe that everything will
eventually be made fair, right and just. One day Eleanor’s little legs and feet
will be perfect because of something beautiful called the Resurrection. Even though
I probably grieved longer than I should I have, toward the end of my pregnancy,
I felt relief and peace about my sweet daughter. She is the most beautiful baby
I’ve ever seen. She makes me want to be a better person. She makes me want to
work harder, love harder, and give more.
I was blessed with an amazing pregnancy. I had no
complications, and I hardly ever felt sick. I think God blessed me with
physical health so that I could work on my emotional state of mind. We had
countless doctors visits with Maternal Fetal Medicine, OB/GYN, Geneticists, and
our pediatrician. We had so many questions that needed answers. We had several
tests done to see if we could have any of those answers. How was this going to
affect her neurologically? Will it just be physical or should we prepare for
more? Will the rest of my future children have the same physical disabilities?
Can she walk? Will she be in a wheelchair her whole life? Will she need
prosthetics?
Luckily,
we eventually had answers to all those questions.
❤️❤️❤️
ReplyDeleteShe's beautiful. Prayers for all of you!!
ReplyDeleteMy brother came across your blog and forwarded it to me. Please look into Fibular Hemimelia. Usually the feet aren't completely gone but everything sounds textbook Fibular hemimelia. Our daughter was born missing her left fibula and her pinky toe and her tibia was shortened and bowed. We opted for amputation amd a prosthetic and she's a happy normal little girl! I hope this helps. Best of luck to you.
ReplyDeleteYes that's exactly what our sweetie has. I've started this blog so I can look back on our journey and maybe Eleanor can look back on it as well. She has a big surgery come this Thanksgiving with the doctors at Shriner hospital in Salt Lake. We have a lot of faith in the team there!
DeleteWhitney, your little girl is so precious! Beckam was a patient at Shriners in SLC too for two months to correct his bilateral club feet! She'll be in great hands. Who is her doctor there? I'll keep you and your little family in my prayers!
DeleteDr Hennesey is our surgeon. I've only
DeleteMet her once but she seems great. I feel really good about the team there!
Whit this is so beautifully written! You are amazing and such a blessing to your sweet baby!
ReplyDeleteI love you three so much. God never hands out more than you can handle....El was meant to be yours because you are the most genuine loving people that can accept this and move forward providing her with the best life. You're all in my prayers and all will go smoothly. Thank you for sharing this all. Reminds me of what's important in life and what's not, our children are the most amazing blessings in the world and no matter what they are perfect !
ReplyDelete❤ you write beautifully. You are all lucky to have each other.
ReplyDeleteI don't know you but came across your blog through a friend on Facebook. My friend has a daughter with limb differences and had a successful blog prior to her birth. Her blog now spotlights children with special needs and her everyday life with her family. It is always a strength to me when I read it. You may find strength on the difficult days in reading the amazing stories as well and even want to share your sweet story. If interested - http://www.thislittlemiggy.com/
ReplyDeleteI follow her on Instagram! I somehow stumbled across her and I love reading her posts about her sweet daughter. Thanks for sharing!
DeleteBest of wishes to all of you ❤️. Eleanor is very lucky to have you both as parents. God picked you knowing the strength and love you'd be able to provide her. She's beautiful and I have no doubt she will have an extremely fulfilling happy beautiful life.
ReplyDeleteThis blog definitely teared me up as a mom I cannot imagine the strength you must have. just having Carson born at 34 weeks tested my ability to stay strong for him. He had a 50/50 chance due to an infection in my amniotic fluid. Luckily he responded very quickly to the antibiodic and now I have a very strong very energetic little boy. ❤️ But my gosh Joe and Whitney what you two have experienced and what you two are doing to make sure she has the fullest life possible is absolutely amazing. Strength, love and empowerment is something you've been very blessed with. Again best wishes to all three of you. She's in the perfect hands. ��
I love you all. You are all my heroes😘
ReplyDeleteGod bless you and beautiful baby she will do amazing things because you believe and will give her the Love and encouragement to believe and love life like you do .. She will do greatness .. I know someone with missing limbs and she can do more things then me , she excels at everything she does what a true inspiration she is to me ... She is a blessing to all of humanity , God bless you and sweet family !
ReplyDeleteShe is beautiful, and her parents are the best parents she could have. She has a wonderful future ahead of her and one thing she will never miss is love. You three are very lucky to have each other in this life. Love you all...
ReplyDeleteOMG....you made me tear up. God knows why he does things and couldn't have placed your little girl in better hands. Im sure that with parents like you two, nothing will hold her back! Keep up the great work.
ReplyDeleteJoseph and Whitney: I have had many prayers of late for you and little Eleanor! I am looking forward to meeting your beautiful daughter! But in my mind's eyes, she has Joe's pluck, grit, and toughness; she has Whitney's grace and beauty! She has inherited both of your shared qualities of faith, determination, persistence, and athleticism. In short, she has all she will need to turn this challenge into a defining life experience! Yes: you will learn much, but she will teach all those who know and love her!
ReplyDeleteWhitney: your writing is beautiful and inspiring! Thanks for sharing! Your sweet family remains in my prayers! --Ken